Today, Sunday August 13 2006, is a day that I will remember for the rest of my life. It has been a momentous day. A day of reckoning. The start of a new phase.
Today was the day that my mother passed away. It happened at about 5 to 1 in the afternoon. I was present, as were my siblings. It was an amazing experience.
My mother had been unwell for over two years now. She was first diagnosed with cancer when I was still in Canada. I was coming up to the end of my trip, but I was considering staying for a while longer. I was coming back for my girlfriend of the time, but when I was told that my mother was sick, then I knew that I was coming home.
That first round of chemotherapy and radiotherapy seems like a long time ago now. It didn't seem too serious at the time, as my mother had had cancer before, when I was a boy, and everybody was quite confident that she'd be able to beat it again. However, as the treatment progressed, we were told that the treatment that she was undergoing was not as effective as it was hoped it would be. My mother was going to need more intense, harsher drugs. This meant that she would be unable to return to work at the childcare centre for some time, and I was asked to fill her position. Which I did.
The next round of treatment my mother had, that I recall, was brachytherapy. This involved the placement of radioactive material inside my mother, which was then "charged up". This was uncomfortable and unpleasant, although my mum did get a tattoo out of it. It didn't seem to help though.
After this she deteriorated for some time. There was a long period where she was so weak she was bedridden for a long period. During this period she lost a lot of weight as the smell of food made her nauseated, let alone eating it. The reason we were given for this was that the brachytherapy had burnt her insides, and that her body would need time in order to heal itself. It was decided that to quicken the healing process, and in order to aid that process, she would spend some time in a hyperbaric chamber. Apparently the change in atmospheric pressure can help the body recover alot more quickly. At the time we were told that many footballers have this treatment to help them get back on the field again after suffering injuries. Mum never saw any footballers in there.
This was a very tough time for the family as this treatment didn't seem to be helping at all, and if anything, Mum seemed to be getting worse. It was around this time that I began to think about the possibility that my mother would not be getting better. I would often go walking by myself at night, thinking of what might happen, trying to understand the emotions I was experiencing. I remember the first time I said out loud what I thought might happen. It was not nice. I remember getting really drunk beforehand, and then getting even drunker afterwards. I was worried.
Eventually the treatment in the hyperbaric chamber ended, which was a good thing. My mother used to dread going there. She wasn't getting any better though, so there were more and more tests. The doctors knew that there was something wrong, they just could not find it. Eventually they found something. It was more cancer.
Treatment for my mum started up again. Again they had to up the drugs that they were using. More toxic, more nauseating, more debilitating. All the time through though, my mother would take it on the chin. Willing to try it all. Wanting to beat it. Wanting to live.
At around this time my father was finishing up his PhD, and looking to graduate in Cambridge. My Mum and Dad had been planning a trip to celebrate this achievement, and were looking forward to the time together. They had originally been planning a trip to Las Vegas to renew their wedding vows in front of Elvis when Mum was first diagnosed. This new trip was to take the place of that. Mum worked as hard as she could to make it on this trip. She was unable to though. She was too weak.
I ended up going in my Mum's stead. It was a good trip.
Just before we left though, we were given some news by the doctors. They told us that Mum's tumour was inoperable, and that it didn't look good. As the cancer hadn't been retarded by the previous bouts with the radiation, the prognosis was not good. On top of this, Mum was back in the hospital for an extended visit for the first time. When we left, it was a pretty bleak time.
As I said before, the trip was good. We knew that there were going tobe some tough times ahead for us when we got back, so Dad, Stuart and I made the most of our time together. While we were away, Mum began seeing the palliative care doctors who gave her a new medication regime. The change in her was miraculous. I remember getting off the plane and being astounded to see my mother by herself outside of the house. I could not remember the last time I had seen her looking so well. It was terrific.
On her new medication Mum was given her life back. She was eating again, putting weight back on. She also had her hunger for life back again. She wanted to go out and do things again. Going to lunch, going on outings. It was terrific. It was decided that we'd take an apartment down the coast for 6 months. We spent a lot of time down there. It was wonderful.
There was a downside to us coming back though. My aunt, who had been diagnosed with terminal cancer the year before, passed away. The week before she died we had an early Christmas for her. It was, as my father said, gruesome. My aunt was there in body only. She had wasted away to nothing. Dosed heavily on morphine, it was a very morbid affair. Everyone tried to put on a brave face, but we all knew that it was a portent of things to come. The funeral was also a very sad affair, as we knew that before long we would be back under similar circumstances. From this though my mother made some decisions on how she would like the end to be. She decided that she did not want to be at home when she died. She did not want us waking in the morning and going to check to see if she had made it through the night. She did not want us waiting for her to die. She did not want to be an unnecessary burden. (not saying that what Auntie Jan did was wrong, just that Mum decided that that was not for her)
After that, things went back to normal. Life went on for a while. Christmas. New Years. Time spent down the coast. Slowly though, Mum was being worn down. She was still trying the chemo, still hoping, but she was running out of options.
At some point Mum had started having troubles with her legs. They were swollen and painful. I think that it was about Easter time. What she had was deep vein thrombosis. Something was causing her blood to have a hard time making its way out of her legs and back up to her heart, and it was starting to clot. This meant that she now added the hardcore anticoagulant Warfarin to her list of drugs. She had her own dispensary really. Something to stop the pain. Something to stop the nausea. Something to help her sleep. Something to keep her regular. Something to stop the side effects of something else. Something to stop more side effects. Something to stopthe more intense pain. She had all the different little coloured pills with all the different little markings.
Also around this time we had a family meeting with some of the staff of the hospital. There Mum spoke to us about what she would like to happen. About how she would like my brother to come home. About how she would like for us to come together for special occasions, and just have some nice quality times together as a family. She also spoke about her vision for the family after she had left us, and what she would like for us to do. She was also spending more time in the hospital. Up in Ward 4A. It was nice up there. It was never daunting going up to visit. In fact some of my favourite times would be up there. I'd finish work in the afternoon and then go and visit her, having my mother's undivided attention for a couple of hours at a time. We'd talk about the centre, the families there, what was on the television. Whatever was going on. It was nice.
Unfortunately her legs were starting to give her more and more bother. Plus the cancer was spreading. Her diet was changed, to try and minimise her discomfort. Her medication roster was also changed. The DVT would come and go. Her immune system was non-existent. She was a regular recipient of blood transfusions, which would pep her up for a bit. But there seemed to be more and more things going wrong. To talk to her though, you would not know she was unwell as she was still sharp as a tack. Sharper probably, even through the medication.
These past few weeks have been tough. There was a blockage in her venae cavae, caused by the DVT. The surgeons decided to do an operation where they inserted a stent to allow the clots to pass through. They then took the stent out. Mum picked up an infection after this procedure which became septicemia. This was a worrying time for the family as she became very unwell very quickly. I remember going up to the hospital one night to visit her. I was there for around an hour. Mum finished her dinner, then went to the toilet. When she came back from the toilet she had an attack of the shakes. Like when you have a fever but feel cold from the core out. There was nothing I could do as I watched my mother shake and shake, with the nurses giving her extra blankets and a shot and oxygen to help her relax. It was not a nice night. I left Mum that night as she drifted off into a fitful sleep.
Eventually though she beat the infection. She even made it home. We had meatloaf that night. Mum was weak though, but you could see that she was happy to be home. To be able to eat with the family. To see the dog. To sleep in the same bed as my father. She loved being back in the action. We even went out for Yum cha.
It was short lived though. On the Tuesday her legs were swollen again, and purple. She had a last night in home, then she was taken back into the hospital. Back up to Ward 4A. It was like before though, she was okay up there. I went up to visit and we hung out together for a couple of hours.
Friday night was my Aunt Susan's birthday. Even though Mum wasn't there, it was good to have the family together. Ria was there too. We had some fun that night, even though Stuey burnt Nanna and spilled red wine on the floor and wall. All the old stories came out. All the embarassing ones. A real family night. We had roast pork.
On the Saturday I went for coffee with Stuart and Tim down at Denim. The sun was shining, the birds were singing, 11 was working. It was a great morning. No parking tickets. Afterwards we had some baked goods in West End and then a beer in the garden at Lock and Load. I was then dropped off in town and picked up my oilskin jacket, a couple of jumpers and some lip balm. I was also told that my iPod is unable to be salvaged. Then I took the train to Auchenflower station and went up and saw my mum. Mum was holding court over quite a crowd. Will was even sitting on her commode, but I don't think that he knew. I showed her my new purchases, and it was good. Before I knew it though, it was time to go. That was okay. Mum was feeling good, and enjoying herself. I'd be up to see her tomorrow.
Saturday night I went and played some poker and got drunk. I spoke to Josh, who had just vomited in a toilet at the pub. It was a good night. Great pizza. I had some Jaegerbombs and recieved an sms from Luke Jones in Taiwan. I even won a couple of hands. A nice night.
This morning was a great morning. I woke up next to Ria and we hung out for a while in bed, just dozing. Then I walked down to the corner store and bought some real maple flavoured syrup, as opposed to the diet stuff I made the mistake of buying last time. Ria and I made up some pancakes and had them. Then I phoned Dirty Dave to see if he would be able to come and pick me up. Dave and Stu were already up at the hospital. I said that they should have picked me up on the way, but it was okay and they would pick me up on their way home. I would go up in the afternoon. I wanted to take Mum up the centre's group photos. She would have liked to have seen them. I got a phonecall from Stuart though. He said that the nurses had told him that instead of him coming to pick me up, I should get in a cab and get up to the hospital. So I rang a cab, said good-bye to Ria and headed up there. The cabbie was a pleasant guy and told me that he'd be happy to drink recycled water. Apparently he liked how Brisbane had plenty of hills too. It made it more egalitarian. Fair enough.
I went up to the hospital and made my way up to Ward 4A and then down the hallway to Mum's room. Looking at her I knew right away that something was up. She didn't look too good. She wasn't awake, but she wasn't asleep either. Her breathing was laboured. I asked Stuart and Dave if she had been dosed up, but they said that she hadn't, that this was just what was going on. She'd been like that since they'd been there. They'd called Erin. She was on her way. Dad was still a few hours away, coming back from Tarree. Then the nurse came in and told us that now was the time that we should talk to Mum and tell her anything that we wanted her to know. She said that it might be an idea to do it alone. This was scary.
So I went first. I told Mum how I loved her and how I would try and do the right things and that she had been a great mother and that I knew how she believed in me and that I knew that she loved me unconditionally.
Then I left, and someone else went in. Then they moved her into a bigger room. Erin arrived. We all went in. Mum was more restful now. Her breathing was no longer laboured. She was lying peacefully. We sat with her. We spoke to her. We held her hand. We watched as she died. It was beautiful.
After she had passed away, we each had a few minutes alone with her. It was upsetting, but important. The lighting in the room had changed. There was still warmth in her hands. The colour was starting to fade from her face.
We started to make phonecalls. I had to get in touch with my Dad. He was still 4 hours away. It was a long wait, in that room, with Mum. A few people came and went. Friends and family. I had to get out of there a couple of times, get some fresh air. Take a walk down to the park. Dad arrived, and he had some private time, then we sat around her bed for a little while and spoke to each other. Then we said our final good byes and left.
It has been a long day. I'm tired, worn out, exhausted. Yet unable to sleep. Tomorrow I am going to wake up and for the first time in my life be without my mother. She was an incredible lady and a fantastic mum. I will miss her. I will miss her most when she isn't there for me to talk to. I will miss her most when I am having important occasions in my life. I will miss her most when I want her most.
Although I knew this day was coming, I didn't expect it to be today.